People With Fibromyalgia Are Only Understood By People With Fibromyalgia

A friend told me that she had heard two or three colleagues talk about another colleague who had fainted as a result of the side effects of a new drug to treat her fibromyalgia: 
while she was taking her on a stretcher she said, “No one can be so sick. ” 
In what seemed to validate my situation, a supervisor started
his comments by informing me that” I knew a lot about my illness because he and his wife had a close friend with her “.
The other comments turned into a punch in the stomach. when he continued, “so that he may continue and rest. I found two students to take their place during the summer. “
Recently, a person working in our yard has resurfaced.
The contractor told my husband that his wife was disabled. When my husband replied that he understood because I, too, the entrepreneur was quick to say, “Yes, but his wife is much better than mine.” My husband answered eloquently: “It seems that it can easily fool you. “
When I was frustrated and disappointed with the possibility of rain during the baseball game (now postponed), I wrote on Facebook about it, I only managed to get a member of the family, also suffering from a chronic illness, responds: “Do not let your illness rule your health. life. “
Not only was I stunned, but I also hoped that this parent, among all people, would understand me.
Unfortunately, I was wrong.
I know that those who do not suffer from some chronic and debilitating diseases can not fully understand what this entails, but I am always surprised at the level of difficulty that people have to understand.
Of course, we also have trouble understanding the variation in symptoms and how our level of functioning can vary from day to day (or even hourly), but it can still be emotionally boring to find those who seem unwilling listening and listening. learn
No, I can not understand some of the daily suffering and tribulations suffered by a cancer survivor, for example, but I will not minimize or ridicule another.
When I was a child, I remember visiting elderly parents, retirement homes and hospitals.
Nursing was the second most important profession among my mother’s family members.
I even remember a teenager sitting in our room reading (with great enthusiasm) our medical encyclopedias.
The most important thing for me was that my mother and my grandmother explained the impact of the disease on the person, focusing first on it.
Finding those who feel no emotion for others leaves me stunned.
Yes, I suppose I am quick to judge them, as they judge others.
I realize that everyone does not react in the same way to diseases.
Some may even react with fear and naivety.
The most difficult factor for many of us is probably listening to the closest and making rash comments.
Suddenly, we must defend ourselves. It is difficult to solve this problem, especially if we are still struggling with internal conflicts related to our health situation.
Why do many believe that self-control or the will can cure us miraculously?
Why is this particular illness seen by some as self-invoked?
When a person lacks empathy and makes harsh comments, it makes me regret having to live my life for one day only.
They kissed the ground and would be grateful to find their normal body later.
I have no choice but to continue to participate.

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